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A Note of Hope x The Survival Project Podcast: "Your story could be someone else's survival guide."
"Your story could be someone else's survival guide": I was honoured to be a guest on patient advocate Johnathan Healy's 'The Survival Project' podcast to share my chronic illness journey.
Ellie Howe
Nov 28, 20252 min read
'A Note of Hope' from Casey, author of the 'The Body Forgot': "I wanted to celebrate the strengths and creativity of the chronically ill, while also showing that it’s okay to need support."
After years living with fibromyalgia, ME/CFS, MCAS, and long COVID, Casey channelled her own experiences with chronic illness into her debut children's book 'The Body Forgot', which celebrates peoples difference and advocates for inclusion.
Ellie Howe
Nov 7, 20256 min read
A Note of Hope x The Patients Association: Energising the Governments 10-Year Health Plan through patient partnership (Patient Partnership Week 2025).
I was honoured to be part of a panel hosted by the Patients Association as part of Patient Partnership Week 2025, discussing the Governments 10-year health plan to energise the NHS.
Ellie Howe
Sep 11, 20253 min read
Virag's Inspiring Interview: "Ehlers-Danlos Syndrome stole my dream career as a professional pianist...but music continues to bring me happiness!"
Living with Ehlers-Danlos Syndrome, Virag has had to let go of her dream of becoming a professional pianist, yet music remains one of her greatest joys. Through her YouTube channel and Instagram, she continues to share her piano performances, connecting with people around the world.
Ellie Howe
Sep 4, 20255 min read
Alexis's Inspiring Interview: "I haven’t been able to pee for two years due to Fowlers Syndrome...But I'm proud I kept advocating for my son and I."
For the past two years, Alexis has struggled with urinary retention and no sensation in her bladder due to Fowler's Syndrome. As a mom to her son Leo, she also navigates 13 other health conditions. Despite it all, Alexis remains determined to keep fighting and advocating for a better future for herself and her son.
Ellie Howe
May 8, 202510 min read
Lucy's Inspiring Interview: "I Face Pain Every Day, But My Illness Does Not Define Me!"
Lucy lives with gastroparesis, causing relentless pain and vomiting. But she shares how she is so much more than her illnesses!
Ellie Howe
Mar 7, 202513 min read
Abbie’s Inspiring Interview: How a Spinal Injury and Medical Negligence Led to a Fibromyalgia Diagnosis - and Her Path to Acceptance!
Discover Abbie's inspiring journey from a spinal injury to a fibromyalgia diagnosis and how she's found acceptance.
Ellie Howe
Oct 11, 20248 min read
Beth's Inspiring Interview: Chronic Migraines, Hypermobile Ehlers-Danlos Syndrome, and Finding Purpose in Parenthood.
Read Beth's journey with Chronic Migraine, Hypermobile Ehlers-Danlos Syndrome, and finding purpose in parenthood.
Ellie Howe
Oct 4, 202410 min read
Inspiring Interview: Fighting to Be Believed with Myalgic Encephalomyelitis (M.E./CFS), Ehlers-Danlos Syndrome (EDS), and Postural Orthostatic Tachycardia Syndrome (POTS).
Read one of our inspiring interviewees journey of living with Myalgic Encephalomyelitis (M.E./CFS), EDS, and POTS.
Ellie Howe
Sep 27, 202410 min read
Amy's Inspiring Interview: Conquering Cancer, Managing Life-Threatening Allergies, and Living with Functional Neurological Disorder (FND).
Read Amy's inspiring journey of conquering cancer, managing life-threatening allergies, and Functional Neurological Disorder (FND).
Ellie Howe
Aug 30, 202413 min read
Poppy's Inspiring Interview: Navigating Motherhood with multiple Chronic Health Conditions (Low Phospholipid Associated Cholestasis, Functional Neurological Disorder, Fibromyalgia, etc.)
Discover how Poppy navigates life with multiple chronic health conditions, including FND, LPAC, and Fibromyalgia.
Ellie Howe
Aug 23, 20248 min read
Gabby's Inspiring Interview: My Journey to Remission with Complex Regional Pain Syndrome (CRPS).
Discover Gabby's inspiring journey of resilience and determination in battling Complex Regional Pain Syndrome (CRPS).
Ellie Howe
Aug 9, 20248 min read
Samantha's Inspiring Interview: Living with Multiple Sclerosis (MS) and Her Stem Cell Transplant Journey.
Read Samantha's inspiring journey living with Multiple Sclerosis (MS) and her courageous decision to undergo a Stem Cell Transplant.
Ellie Howe
Aug 2, 202413 min read
Juliana’s Inspiring Interview: From Champion Cheerleader to Chronic Illness Warrior…Finding Hope with Hypermobile Ehlers-Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, and More.
Juliana’s journey with multiple chronic illnesses, including IST, POTS, hEDS, MCAS, and MALS.
Ellie Howe
Jul 26, 202411 min read
Sophie’s Inspiring Interview: A Young Women's Journey to Academic Success Despite Health Challenges (Fibromyalgia, HSD, hEDS).
Sophie, a PhD student in English Literature, shares her journey of balancing academic demands with the challenges of chronic illness.
Ellie Howe
Jul 19, 20247 min read
Emily's Inspiring Interview: A Journey of Resilience and Advocacy Through Functional Neurological Disorder (FND), Thoracic Outlet Syndrome (TOS), and Hypermobile Ehlers-Danlos Syndrome (hEDS).
Emily's inspiring journey of resilience and advocacy through FND, TOS, and hEDS.
Ellie Howe
Jul 12, 202415 min read
Emily's Inspiring Interview: An Australian Woman's Battle with Stage 4 Endometriosis and Her Advocacy for Women's Health
Read Emily's journey with endometriosis, PCOS, and Adenomyosis, and how it inspired her to advocate for her women's health issues.
Ellie Howe
Jul 5, 20249 min read
Alexzandra’s Inspiring Interview: Topical Steroid Withdrawal (TSW) and the Challenges of living with a Chronic Skin Condition like Eczema.
Read an inspiring interview with Alexzandra about her journey with Eczema and Topical Steroid Withdrawal (TSW).
Ellie Howe
Jun 28, 202416 min read
Ellie's Blog: Celebrating Five Years Since My Life-Changing Surgery!
Celebrating 5 years of health and happiness on the 5th anniversary of my life-changing surgery for SMA and Nutcracker Syndromes.
Ellie Howe
Jun 21, 202411 min read
Abi’s Inspiring Interview: Complex Regional Pain Syndrome (CRPS), Fibromyalgia, Embracing Mobility Aids, and Finding New (Accessible) Dreams.
Abi (23, UK) shares her Chronic Illness journey with CRPS, Fibromyalgia, M.E., and more. And how she has come to rely on Mobility Aids.
Ellie Howe
Jun 7, 20249 min read
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Charlotte
"Ellie is doing such incredible work, making people feel listened to when sometimes all they've been is ignored.
Keep going Ellie! You're an inspiration."
Positive feedback about the project from our inspiring interviewees and community
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