EDS | A Note Of Hope

Virag's Inspiring Interview: "Ehlers-Danlos Syndrome stole my dream career as a professional pianist...but music continues to bring me happiness!"

Living with Ehlers-Danlos Syndrome, Virag has had to let go of her dream of becoming a professional pianist, yet music remains one of her greatest joys. Through her YouTube channel and Instagram, she continues to share her piano performances, connecting with people around the world.

Inspiring Interviews

Ellie Howe

Sep 55 min read

Beth's Inspiring Interview: Chronic Migraines, Hypermobile Ehlers-Danlos Syndrome, and Finding Purpose in Parenthood.

Read Beth's journey with Chronic Migraine, Hypermobile Ehlers-Danlos Syndrome, and finding purpose in parenthood.

Inspiring Interviews

Ellie Howe

Oct 4, 202410 min read

Harriet's Inspiring Interview: Medical Gaslighting, hEDS (Hypermobile Ehlers-Danlos Syndrome), and Persevering through Pain.

At 15 years old. Harriet has overcome medical gaslighting, and hopes sharing her story will offer solace to others in similar situations.

Inspiring Interviews

Ellie Howe

Apr 12, 20248 min read

'A Note of Hope' from Hania, creator of the ‘Fullabilities’ Project: “I know I have a lot of obstacles…but I have always had a very strong will to live!”

Hanna, Co-Lead of the Fullabilities Project, shares her Chronic Illness journey and what life is like living with several rare conditions.

Inspiring Interviews

Ellie Howe

Nov 17, 20237 min read

Inspiring Interview: Rae

Rae opens up about living with FND, and several other chronic health conditions, and the impact on her daily life.

Inspiring Interviews

Ellie Howe

Oct 6, 20234 min read

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Charlotte

"Ellie is doing such incredible work, making people feel listened to when sometimes all they've been is ignored.

Keep going Ellie! You're an inspiration."

Positive feedback about the project from our inspiring interviewees and community

Virag's Inspiring Interview: "Ehlers-Danlos Syndrome stole my dream career as a professional pianist...but music continues to bring me happiness!"

Beth's Inspiring Interview: Chronic Migraines, Hypermobile Ehlers-Danlos Syndrome, and Finding Purpose in Parenthood.

Harriet's Inspiring Interview: Medical Gaslighting, hEDS (Hypermobile Ehlers-Danlos Syndrome), and Persevering through Pain.

'A Note of Hope' from Hania, creator of the ‘Fullabilities’ Project: “I know I have a lot of obstacles…but I have always had a very strong will to live!”

Inspiring Interview: Rae

INTERESTED IN SHARING YOUR STORY? Send us a message using the form below!

INTERESTED IN SHARING YOUR STORY?
Send us a message using the form below!