M.E | A Note Of Hope

'A Note of Hope' from Casey, author of the 'The Body Forgot': "I wanted to celebrate the strengths and creativity of the chronically ill, while also showing that it’s okay to need support."

After years living with fibromyalgia, ME/CFS, MCAS, and long COVID, Casey channelled her own experiences with chronic illness into her debut children's book 'The Body Forgot', which celebrates peoples difference and advocates for inclusion.

Inspiring Interviews

Ellie Howe

Nov 7, 20256 min read

Inspiring Interview: Fighting to Be Believed with Myalgic Encephalomyelitis (M.E./CFS), Ehlers-Danlos Syndrome (EDS), and Postural Orthostatic Tachycardia Syndrome (POTS).

Read one of our inspiring interviewees journey of living with Myalgic Encephalomyelitis (M.E./CFS), EDS, and POTS.

Inspiring Interviews

Ellie Howe

Sep 27, 202410 min read

Abi’s Inspiring Interview: Complex Regional Pain Syndrome (CRPS), Fibromyalgia, Embracing Mobility Aids, and Finding New (Accessible) Dreams.

Abi (23, UK) shares her Chronic Illness journey with CRPS, Fibromyalgia, M.E., and more. And how she has come to rely on Mobility Aids.

Inspiring Interviews

Ellie Howe

Jun 7, 20249 min read

Immy’s Inspiring Interview: M.E. (Myalgic Encephalomyelitis), Chronic Fatigue, and Embracing Simple Joys

Discover Immy's inspiring journey with M.E. (Myalgic Encephalomyelitis) as she perseveres through the challenges and advocates for awareness

Inspiring Interviews

Ellie Howe

Apr 5, 20243 min read

Hannah’s Inspiring Interview: Navigating Multiple Chronic Illnesses (M.E/CFS, Fibromyalgia, hEDS).

Hannah, who lives with multiple chronic conditions, shares their story for the A Note of Hope project.

Inspiring Interviews

Ellie Howe

Mar 29, 20243 min read

Inspiring Interview: Rebeccah

Rebeccah Prince, 33 (UK) “Always remember you are strong, you are intelligent, you are wise, and you are kind…your illness can take away...

Inspiring Interviews

Ellie Howe

May 5, 20236 min read

Inspiring Interview: Charley

Meet Charley - Diagnosed with M.E and Rheumatoid Arthritis, Charley is determined not to let her illnesses and pain define her!

Inspiring Interviews

Ellie Howe

Apr 7, 20235 min read

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Charlotte

"Ellie is doing such incredible work, making people feel listened to when sometimes all they've been is ignored.

Keep going Ellie! You're an inspiration."

Positive feedback about the project from our inspiring interviewees and community

'A Note of Hope' from Casey, author of the 'The Body Forgot': "I wanted to celebrate the strengths and creativity of the chronically ill, while also showing that it’s okay to need support."

Inspiring Interview: Fighting to Be Believed with Myalgic Encephalomyelitis (M.E./CFS), Ehlers-Danlos Syndrome (EDS), and Postural Orthostatic Tachycardia Syndrome (POTS).

Abi’s Inspiring Interview: Complex Regional Pain Syndrome (CRPS), Fibromyalgia, Embracing Mobility Aids, and Finding New (Accessible) Dreams.

Immy’s Inspiring Interview: M.E. (Myalgic Encephalomyelitis), Chronic Fatigue, and Embracing Simple Joys

Hannah’s Inspiring Interview: Navigating Multiple Chronic Illnesses (M.E/CFS, Fibromyalgia, hEDS).

Inspiring Interview: Rebeccah

Inspiring Interview: Charley

INTERESTED IN SHARING YOUR STORY? Send us a message using the form below!

INTERESTED IN SHARING YOUR STORY?
Send us a message using the form below!