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Lucy's Inspiring Interview: "I Face Pain Every Day, But My Illness Does Not Define Me!"
Lucy lives with gastroparesis, causing relentless pain and vomiting. But she shares how she is so much more than her illnesses!
Ellie Howe
Mar 713 min read
Inspiring Interview: Fighting to Be Believed with Myalgic Encephalomyelitis (M.E./CFS), Ehlers-Danlos Syndrome (EDS), and Postural Orthostatic Tachycardia Syndrome (POTS).
Read one of our inspiring interviewees journey of living with Myalgic Encephalomyelitis (M.E./CFS), EDS, and POTS.
Ellie Howe
Sep 27, 202410 min read
Juliana’s Inspiring Interview: From Champion Cheerleader to Chronic Illness Warrior…Finding Hope with Hypermobile Ehlers-Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, and More.
Juliana’s journey with multiple chronic illnesses, including IST, POTS, hEDS, MCAS, and MALS.
Ellie Howe
Jul 26, 202411 min read
Shannon's Inspiring Interview: Ehlers-Danlos Syndrome and Balancing Motherhood with Multiple Chronic Illnesses.
Discover Shannon's inspiring journey as she navigates motherhood while living with Ehlers-Danlos Syndrome and other chronic illnesses.
Ellie Howe
May 24, 20247 min read
Ellie's Chronic Illness Journey: The Story Behind A Note of Hope!
Ellie, creator and author of A Note of Hope, shares her remarkable story of resilience, courage, and determination with chronic illness.
Ellie Howe
Apr 9, 202414 min read
'A Note of Hope' from Hania, creator of the ‘Fullabilities’ Project: “I know I have a lot of obstacles…but I have always had a very strong will to live!”
Hanna, Co-Lead of the Fullabilities Project, shares her Chronic Illness journey and what life is like living with several rare conditions.
Ellie Howe
Nov 17, 20237 min read
Rosie’s Inspiring Interview: "I still get moments of sadness and grief for the life I could’ve had if I weren't chronically ill...But I’m now able to look towards the future!"
Once a passionate equestrian travelling the world with her family’s polo business, Rosie was diagnosed with multiple chronic health conditions, including hEDS, POTS and Fibromyalgia, which forced her to give up the life she loved. But after years of navigating grief and uncertainty, Rosie is beginning to rediscover herself and use her voice to raise awareness and advocate for greater accessibility in the world she once thought she'd never be a part of again.
Ellie Howe
Mar 3, 20239 min read
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Charlotte
"Ellie is doing such incredible work, making people feel listened to when sometimes all they've been is ignored.
Keep going Ellie! You're an inspiration."
Positive feedback about the project from our inspiring interviewees and community
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